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- Written by Maya
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When someone with Cystic Fibrosis dies, it hits me pretty hard, but not like grief or depression does. It makes me realize that I'm basically fighting a war, and what makes this even more real, is the fact that I connected so well with several war veterans at a leadership conference in Boston. In fact, one of them even said I was his hero, and that man had practically saved an entire city from terrorists single-handedly.
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- Evaluate a significant experience, achievement, risk you have taken, or ethical dilemma you have faced and its impact on you.
Words: 250-500
Maya Nibbe
9/1/2018
About three years ago, one cold Christmas day, I got my first dirtbike. It wasn’t really a dirtbike. It was a miniature version of a dirtbike that lasted long enough to give me a scar and a few minor injuries, and gave me some confidence to move to a full-sized dirtbike. Once I was done with it, I got my hands on an actual dirtbike, a red 1996 Honda CR80. It has worked well for me in the last two years I’ve had it. Sure, it can be hard to deal with at times, especially since it’s a two-stroke, and I've put it through a lot, but it’s mine and I’m proud of it!
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- Category: Maya
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I've always enjoyed the serenity and isolation of the wilderness and the countryside. It fits me well in a lot of ways. It gives me a place to retreat to when times get tough. It gives me a place to hide from the judging eyes of modern society, and a place to spend hours and days exploring without it getting boring. I'd spend a lot more time out there if I didn't have Cystic Fibrosis, but somehow shared the same personality and views on life without CF as I do now, which to me is questionable. Would I be the same person if I didn't have to suffer nearly as much? No.
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- Category: Maya
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Trust is something I talk about often but don't really understand. I've got too many knives in my back to count. So far, almost everyone I've called a friend has put a knife in my back, and those who didn't either moved away from me, or I moved away from them. Many of those I've met who I never really called a friend turned into bullies, thus turning my "friends" into bullies as well.
And since my parents divorced when I was a toddler, I've been introduced to a few unfortunate partners. One of them turned into my stepmom, who I haven't really seen in a few years because she always went out of her way to make me feel worthless and upset. Luckily, I saw through her lies, and so has everyone else except for my dad. So, Dad and I made a compromise. I left the house so I didn't have to see my stepmom anymore, and I've managed to keep a good relationship with Dad by hanging out with him on some weekends.
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- Category: Maya
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Today, I had yet another doctor's appointment. A few days ago, I went in to get my blood drawn so I can stay on a new medication that attacks the root of the Cystic Fibrosis problem. The doctors are inching towards a cure, and while they put me on these pills that are designed to change how my cells function in my body, they have to monitor me closely for health and research reasons.
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