I'm on my own in many ways. I hunt to survive, I don't know of a single teenage girl with CF who isn't on the lung transplant list, and I've got a mile-long list of mostly non-conventional CF medication. But hey, I'm still very much alive and living life the best way I know how. I give God a lot of credit, since without Him I would've died a long time ago, and I trust my instincts and ability to research stuff when a new medication and/or illness is presented.
Of course, I'm fallible. I've screwed up before, and will screw up again, but I'm healthy enough to have some room for mistakes. Luckily, my mom's right there with me on research, so if my way doesn't work, we'll try her way, and vice versa. But, when I'm healthy, I take advantage of that and fill my days up with work and good times. When I'm sick, I basically hibernate like a bear until I heal. It's a hard life, but I wouldn't live life without CF being part of it. If I could cure my disease tomorrow, I would, but I couldn't relive my life without it. I'd be a completely different person living a completely different life, and it kinda scares me to think about how much different I'd be if I didn't have CF. I'd be more or less normal, and that's a strange thought. I honestly can't see myself doing things most girls my age are doing, but I'd probably be into that stuff if I wasn't born into suffering.
There's good things in everything, and that's the greatest lesson I've been taught. Yeah, CF sucks, and Pulmonary Atresia isn't much better for pretty much everyone else with it, but there's lessons to be taught that almost can't be taught any other way. They're blessings disguised as massive burdens, and I just have to make the best of it.
(come back to everyday is a choice. There's blessings, there's burdens.)
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