When I started talking more about my CF on social media, and began to attract the attention from the CF community, a few larger names got offended for no other reason than I was "too damn well to have CF!" as one person put it. Some people private messaged me on Instagram, demanding picture proof I have CF, such as pictures of my treatments and pills. Even then, not all of them were satisfied, and the "intervention" private message group I was unwillingly added into, fell apart and all the people involved in it blocked me. I don't have much of an explanation for that, but I've seen other CFers address things like that on social media since.
I wasn't bothered by this. In fact, it was pretty entertaining for the few hours it lasted. If I'm too healthy to be a genuine member of the CF community, well then, it works for me. I'd rather be alive than dying, and if the CF community is only for those who are actually dying, then I won't be part of that. Luckily, not long after, the BBC came out with a mini documentary about an Australian bodybuilder with CF, who looks like and calls himself Thor. So, the CF community had a bit of a wake-up call, and I haven't been accused of faking CF since.
My mom has received similar harassment when she talked about my non-conventional treatments. People are so scared of going against the norm, they'll witch-hunt anyone who does. My mom is a fighter though and (secretly) likes some drama, so she dealt with those who were commenting mean and ignorant stuff, and she did it while laughing. She said she felt bad for them. Many of those people were either dying from CF or directly related to someone who was, and mom just told me something along the lines of, "You can warn people of the stampede, but don't die in it with them if they refuse to listen."
